Professional clinical guidelines for rare diseases: methodology
نویسندگان
چکیده
منابع مشابه
Professional clinical guidelines for rare diseases: methodology
Guidelines are systematically developed statements to assist practitioner and patient decisions about appropriate health care for specific clinical circumstances [1]. They concern often complex diagnostic or therapeutic strategies with several possible interventions at each step, where each intervention has to be assessed and compared with other possible interventions at short and long term for...
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McMaster University; Hamilton, Canada; Hamilton Regional Laboratory Medicine Program; Hamilton, Canada; Universitaetsklinikum; Freiburg, Germany; National Center for Rare Diseases; Istituto Superiore di Sanit a; Rome, Italy; National Research Council; Institute for Research on Population and Social Policies; Rome, Italy; National Research Council; Institute of Clinical Physiology; Lecce, Italy;...
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Clinical practice guidelines (CPGs) for rare diseases (RDs) are scarce, may be difficult to identify through Internet searches and may vary in quality depending on the source and methodology used. In order to contribute to the improvement of the diagnosis, treatment and care of patients, Orphanet (www.orpha.net) has set up a procedure for the selection, quality evaluation and dissemination of C...
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Background: It is notoriously challenging to implement evidence-based care and to update and improve health care policy. Adhering to evidence-based Clinical Practice Guidelines (CPGs) serves as the driving force behind making decisions based on the best evidence and making efforts for improving the quality of patient care and outcomes. Despite requiring Iranian hospitals to implement CPGs in Ja...
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Avariety of medical professional societies have developed ethics practice guidelines or position statements regarding specific ethics issues (1–6). The Endocrine Society published its Code of Ethics for practice in 2001 (1); however, none of the practice guidelines are specific to thyroidology. In the field of thyroidology, specific clinical ethics issues arise in different clinical contexts. F...
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ژورنال
عنوان ژورنال: Orphanet Journal of Rare Diseases
سال: 2012
ISSN: 1750-1172
DOI: 10.1186/1750-1172-7-s2-a12